New York Allergy & Asthma Support Groups

Food Allergies: Coping, Educating, Supporting (FACES)

Syracuse, NY

Specialty Coordinator:
Rose Boynton
Phone: 315-492-3941
E-Mail: rboynton@twcny.rr.com

Food Allergies: Coping, Teaching, Supporting (FACTS)

Rochester, Greater NYC Metropolitan Area, NY

Dedicated to providing resources, support, and encouragement to families coping with food allergies, as well as raising awareness and educating the community regarding the unique needs of these families.

Website: http://www.factsplace.com

Meeting Dates: 10:00 a.m. - 12:00 p.m. on the 3rd Saturday of every month

Meeting Location: Fairport United Methodist Church, 31 West Church St., Fairport, NY

Specialty Coordinator:
Sandy Eckdahl
Phone: 585-421-9273
E-Mail: jseck01@frontier.net

Joy Leinenbach
Phone: 585-264-9033
E-Mail: ejleinenbach@gmail.com

Medical Advisor:
Stuart Garay, MD

Food Allergy Educational Alliance (FAEA)

New York City, NY

Specialty Coordinator:
Sari Canell
Phone: 917-579-6363
E-Mail: sbcanell@aol.com

Food Allergy Support and Education Group (FASE)

Port Washington, Long Island, NY

Specialty Coordinator:
Kelly Dennis
Phone: 516-767-2749
E-Mail: kpkdenn3@optonline.net

Gluten-Free/Casein-Free Support Group

Bedford Hills, NY

Gluten Free and Casein Free support group for new to the diet OR experienced parents. Opportunity to share resources, products and information.

Specialty Coordinator:
Sue Bronic
E-Mail: bronicos@msn.com

Gluten-Free/Casein-Free Support Group

HSBC Bank Building
Transit Road
Williamsville, NY

They have parents and many teachers in attendance. They've started a GFCF co-op through Northeast Cooperatives. Membership into the co-op is a one time $8 per family charge and meetings are free. The group discusses meal ideas, shopping tips, recipes and health issues.

Meeting Location: HSBC Bank Building, 3rd Floor

Specialty Coordinator:
Kathy
E-Mail: kazoo@pcom.net

Michelle
E-Mail: chsjer25@aol.com

Long Island Celiac Support Group #23

Long Island, NY

This group helps people with Celiac Disease as well as Dermatitis Herpetiformis.

Website: http://www.liceliacs.synthasite.com

Meeting Dates: 7:30 p.m. every couple of months

Meeting Location: Winthrop University Hospital Outreach Center, 101 Mineola Blvd.

Specialty Coordinator:
Jim Blank
Phone: (516) 673-7778
E-Mail: li_celiacs@optonline.net

Parents of Allergic and Asthmatic Children (PAAC)

New York, 5 Boroughs, NY

Meeting Dates: Contact for information

Meeting Location: 35 East 35th Street

Specialty Coordinator:
Caren Sanger
Phone: 212-889-3507
E-Mail: carsanger@aol.com

Medical Advisor:
Paul Ehrlich, MD

Parents of Asthmatic Children and Food Allergies Support Group

Nassau and Queens Counties, NY

Meeting Dates: Contact for information

Meeting Location: Contact for information

Specialty Coordinator:
Gloria Mallia, RN
Phone: 516-622-5070
E-Mail: gmallia@lij.edu

Medical Advisor:
Marie Cavuoto, MD

Protect Allergic Kids (PAK)

P.O. Box 227
Holtsville, NY 11742

Phone: 631-207-1681

Raising food allergy awareness by promoting education, providing support to members, and keeping children safe.

Website: http://www.protectallergickids.com

Meeting Dates: Contact for information

Specialty Coordinator:
Cristina Stainkamp
Phone: 631-207-1681
E-Mail: cristina@protectallergickids.com

Alisha Coupe
Phone: 631-764-8716
E-Mail: alisha@protectallergickids.com

Medical Advisor:
Daniel Mayer, MD
Phone: 631-366-5252

Raising Our Celiac Kids

Long Island, NY

Support group for celiac children. We welcome families of autistic spectrum kids involved in a gluten-free/casein-free dietary intervention program.

Specialty Coordinator:
For Nassau and Suffolk, Jill Schneider
Phone: 516-551-4564
E-Mail: jahms@optonline.net

Jamie Flecker, co-chairman
Phone: 631-846-9384
E-Mail: candlesbyjamie@yahoo.com

Raising Our Celiac Kids

Lynbrook, (South Nassau), NY

Support group for celiac children. We welcome families of autistic spectrum kids involved in a gluten-free/casein-free dietary intervention program. Group is limited to South Nassau activities.

Specialty Coordinator:
Angela Silverstein
Phone: 516-593-2904
E-Mail: venusangmm1@optonline.net

Raising Our Celiac Kids, ROCK

Mohawk Valley (Upstate New York)
Rome, NY

Support group for celiac children. We welcome families of autistic spectrum kids involved in a gluten-free/casein-free dietary intervention program.

Specialty Coordinator:
Rebecca Madeira
Phone: 315-337-7671
E-Mail: celiacparents@earthlink.net

Raising Our Celiac Kids, ROCK'n New York

Auburn, NY 13021

Support group for celiac children. We welcome families of autistic spectrum kids involved in a gluten-free/casein-free dietary intervention program.

Specialty Coordinator:
Nicki Hai
Phone: 315-252-2764
E-Mail: jnhai@adelphia.net

Susan Reilly

Raising Our Celiac Kids, ROCK'n Upstate New York

Jamesville, NY 13078

Support group for celiac children. We welcome families of autistic spectrum kids involved in a gluten-free/casein-free dietary intervention program.

Specialty Coordinator:
Karen Dorazio
Phone: 315-469-8154
E-Mail: KDORAZIO@TWCNY.RR.COM

Raising Our Celiac Kids, ROCK'n Upstate New York

Lake George (Glenn Falls Region), NY

Support group for celiac children. We welcome families of autistic spectrum kids involved in a gluten-free/casein-free dietary intervention program.

Specialty Coordinator:
Lisa Fox
Phone: 518-668-5838
E-Mail: fox_lisa@hotmail.com

SAY of Nassau County, Asthma and Allergies

Nassau County, NY

Meeting Dates: Contact for information

Meeting Location: Contact for information

Specialty Coordinator:
Renee Theodorakis
Phone: 516-625-5735
E-Mail: reneetheo1@aol.com

Medical Advisor:
Gary Weinstock, MD

The Fingerlakes Celiac Group

Ithaca, NY

The purpose of the group is to meet up with people in the Fingerlakes region of NY to share food, recipes, experiences, and to learn from one another.

Website: http://www.meetup.com/thefingerlakesceliacgroup/

Meeting Dates: Contact group for information

Meeting Location: Ithaca Bakery

Specialty Coordinator:
Julie Ehrentraut
Phone: 315-423-3971

Laurie Cole
Phone: 607-533-9102

WNY Food Allergy Connection

Western New York, Buffalo, NY

Specialty Coordinator:
Kathy Lundquist
Phone: 716-759-1314
E-Mail: allergy@adelphia.net